Annual Event 2023
Thank you to everyone that joined us at the EJS ACT-PD Annual Event 2023! It was brilliant to hear from our Working Group chairs about all of the excellent progress each group has made over the past year. The day also included exciting updates on how our patient and public input has impacted our trial decisions so far, our communications strategy and possible exploratory outcome measures. This was a great chance to set the scene for another exciting year in which we will work towards trial delivery and launch!
EJS ACT-PD Present at the PD Frontline Webinar
Check out EJS ACT-PD presenting at the PD Frontline Webinar: ‘Trials and the Parkinson’s Community’. We presented an overview of the project, and why having people with Parkinson’s and their care partners involved in all aspects of research is so important!
The full recording is now available on YouTube via the following link:
World Parkinson Congress
The EJS ACT-PD team were delighted to present 7 posters this July at the World Parkinson Congress 2023 held in Barcelona. This was a brilliant opportunity to share our progress to date and to learn more about many other brilliant initiatives and communities within the world of Parkinson’s. All 7 posters can be found on our poster gallery page.
ICTMC 2022
The core team have learnt a great deal about effective and inclusive trial development at the 2022 International Clinical Trials Methodology Conference (ICTMC) in Harrogate. These insights will allow us to pre-empt and avoid many potential issues from impacting the overall success and experience of the EJS ACT-PD Trial.
Protocol Writing Meeting
We are delighted to announce that the EJS ACT-PD steering group, core team and patient representatives have recently conducted a 3 day Protocol Writing Meeting in which we thoroughly discussed and reviewed working group recommendations and made important trial design decisions for inclusion in our first draft protocol. This has resulted in brilliant progress and has instilled renewed excitement for the development of this revolutionary trial platform going into the new year!
PPIE Wider Network
We are looking for people with Parkinson’s and carers / partners, with an interest in research to form a wider network for the EJS ACT-PD project! Members of this network would be contacted with requests for further input when our Patient and Public Inclusion and Engagement (PPIE) Working Group feel wider contribution would be helpful. This might include being sent surveys, being asked to vote on options or being contacted to input on discussions. Find out more on our ‘Get involved‘ page!
Communications Team
We are delighted to announce that we have set up our communications team who will aid both internal and external communications including developing outputs in various formats e.g. educational videos to keep stakeholders and patients well-informed on trial progress.
MDS Congress 2022
The EJS ACT-PD team were thrilled to attend and present at the recent MDS Congress in Madrid! The congress provided an amazing opportunity to further our understanding of the latest management strategies and research outcomes for Parkinson’s disease. Our brilliant Clinical Research Fellows presented 6 posters detailing all of our Working Groups amazing progress over the past year.
Annual Event 2022
We held the EJS ACT-PD Annual Event in June 2022, a brilliant day where consortium members from across the world came together to celebrate the progress made since our launch event in 2021. Our members presented the project’s developments so far, collaborated on next steps and participated in a consortium-wide discussion to align our goals. The day was a great success and we are so grateful to all of our brilliant members for their dedication to the EJS ACT-PD Initiative.
EJS ACT-PD attends AD/PD 2026 conference on advances in Alzheimer’s and Parkinson’s Research
The EJS ACT-PD team were present at the AD/PD 2026 conference on 17th–21st March in Copenhagen, which brought together leading experts in Alzheimer's disease and Parkinson's disease research.
Marking its 20th edition, the conference showcased the latest advances in disease mechanisms, clinical trials, diagnostic markers, and emerging therapeutic and prevention strategies. It provided a key platform for scientists, clinicians, and innovators to exchange knowledge, present new findings, and foster international collaboration in the fight against neurodegenerative disorders.
PD Frontline webinar
EJS ACT-PD Featured in Latest PD Frontline Webinar
Thanks to PD Frontline for featuring us in their latest webinar, with Project Manager Georgia Mills sharing insights into the trial and how people can get involved.
This engaging session is a great opportunity to learn more about the trial, whether you are interested in clinical research, trial design, or finding ways to contribute to Parkinson’s studies.
We thank PD Frontline for hosting this informative webinar and for creating a welcoming space for discussion, learning, and community engagement.
Watch the recording here: https://youtube.com/watch?v=nwTcQESMFxs
EJS ACT-PD Team Showcases Innovative Trial Design and Inclusive Research at MDS 2025 the #MovementDisorderCongress in Hawaii.
Members of the EJS ACT-PD team were delighted to attend the International Congress of Parkinson’s Disease and Movement Disorders in Honolulu this month.
It was a brilliant opportunity to connect with colleagues from around the world, learn about the latest #Parkinsons developments, and share insights and updates on our progress.
The team presented a number of posters at the International Congress of Parkinson’s Disease and Movement Disorders (MDS) 2025, highlighting key advances in trial design, recruitment, and infrastructure for large-scale Parkinson’s disease research.
The presentations focused on ensuring the long-term sustainability and innovation of the platform, the systematic, data-driven approach to site selection, designed to support efficient and inclusive recruitment, and how the challenge of equitable recruitment in clinical trials is being addressed.
EJS ACT-PD Engages with Parkinson’s Community at Par-Con 2025
EJS ACT-PD was proud to be part of Par-Con 2025, held on 24th–25th October at the Vox Venue in Birmingham and online, bringing together hundreds of people from across the Parkinson’s community.
The event welcomed around 360 attendees in person and a further 835 participants online over the two days, creating a vibrant and inclusive space to share knowledge, experiences, and practical advice on living well with Parkinson’s. The EJS ACT-PD team hosted a stand throughout the event, connecting with attendees and sharing information about the trial and opportunities to get involved in research.
EJS ACT-PD Team Celebrates Seven Abstracts Accepted at World Parkinson’s Congress 2026
We’re thrilled to share that 7 abstracts from the Edmond J Safra Accelerating Clinical Trials in Parkinson’s Disease (EJS ACT-PD) team have been accepted for presentation at the #WorldParkinsonsCongress 2026! Together, these abstracts highlight the breadth and innovation of the EJS ACT-PD programme. Come and see us at the event to find out more about the trial itself as well as the ‘Join Parkinson’s Research’ (JPR) ResearchPlusMe Online Registry.
The team looks forward to sharing these findings and connecting with the global Parkinson’s community at the World Parkinson’s Congress in May 2026.
EJS ACT-PD featured at Cure Parkinson’s Autumn Research Update
Thank you to Cure Parkinson's for having us at their Autumn Research Update event in November!
If you missed it, you can watch our Project Manager Georgia Mills share an update on how people can get involved in the EJS ACT-PD trial and why participation in Parkinson’s research is so important.
The day also featured our brilliant PPIE Working Group Chairs, who answered questions about their experiences of taking part in, and helping to shape, Parkinson’s Research.
Watch here: EJS ACT-PD: how to get involved – Georgia Mills
Over 2,000 People Join ‘Join Parkinson’s Research’ Registry
More than 2,000 people with Parkinson’s across the UK have now signed up to the Join Parkinson’s Research (JPR) @ Research+Me registry—marking an important milestone in connecting individuals with opportunities to take part in vital research!
Signing up is quick and straightforward, taking just a few minutes to complete. Once registered, individuals can be matched to relevant studies and receive information about opportunities to get involved.
This growing community is already helping to support recruitment to studies like EJS ACT-PD.
Find out more and sign up here: https://www.researchplusme.co.uk/join-parkinsons-research/
