Our Team

An EJS ACT-PD Core Management Team has been appointed across University College London (UCL) and Newcastle University. The Core Team are dedicated to coordinating and facilitating the communication, collaboration and progress of the Working Groups. University of Plymouth (UoP) were also involved in Stage 1 of the EJS ACT-PD Initiative.

Tom Foltynie

Professor Tom Foltynie is Professor of Neurology at University College London and Consultant Neurologist at the National Hospital for Neurology and Neurosurgery.

He has a specialist interest in Parkinson’s disease (PD), Deep Brain stimulation and the development of novel treatments for PD.

Prof. Foltynie is involved in several trials of new treatments for PD, including chief investigator for a series of trials of Exenatide- a potential neurorestorative treatment for PD. He is excited to be continuing his work in exploring disease modifying treatments for PD through EJS ACT-PD.

“I am delighted to embark on this project with the support of the Edmond J. Safra Foundation. Our existing process of ‘one drug at a time’ is far too inefficient, and it is high time that we had a platform capable of assessing multiple approaches simultaneously.”

Camille Carroll

Professor Camille Carroll is a Professor of Clinical Neuroscience at Newcastle University. Her research is focused on disease modification and the use of digital health technologies for monitoring and personalised care in Parkinson’s. Prof. Carroll is co-chief investigator of the Edmond J Safra ACT-PD multi-arm, multi-stage platform trial for disease modifying interventions in Parkinson’s and has led the development of a national web-based research registry for Parkinson’s disease. She co-chairs the international Linked Clinical Trials Committee, prioritising repurposed drugs for disease modification trials in Parkinson’s. She is the joint clinical director of the Parkinson’s Excellence Network in the UK. Additionally, she is co-chair of the international Movement Disorders Society Patient and Carer Committee, deputy chair of the Parkinson's Disease Clinical Studies Group, and member of the EAN/MDS-ES Parkinson's Disease Guidelines Task Force and Association of British Neurologists Movement Disorders Advisory Group. She is an Associate Editor for the Journal of Parkinson’s Disease.

An EJS ACT-PD Core Management Team has been appointed across University College London (UCL) and the University of Plymouth (UoP). The Core Team are dedicated to coordinating and facilitating the communication, collaboration and progress of the Working Groups.

Our Steering Group

Co-chaired by Professor Foltynie and Professor Carroll, the EJS ACT-PD Initiative’s Steering Group were collectively responsible for the successful delivery of the project, according to the agreed timelines and budget to build the trial, and have all agreed to the Terms of Reference for the group. The group continues post-trial launch, to make decisions on the platform’s future innovations and evolution.

The EJS ACT-PD Initiative’s Research Project Manager, Georgia Mills also sits on the Committee.

Professor Roger Barker                                         Professor of Clinical Neuroscience and Consultant  Neurologist, Co-Chair Trial Design WG	Professor James Carpenter Professor of Medical Statistics Programme Leader in Methodology, Co-Chair Trial Design WG	Professor Anette Schrag Professor of Clinical Neurosciences and Consultant Neurologist, Chair Outcome Measures WG	Dr Joy Duffen Research Associate and Special Project Manager, Co-chair Funding & Sustainability WG	Professor Sonia Gandhi Professor of Neurology and Consultant Neurologist, Co-chair Funding & Sustainability WG
Dr Kevin McFarthing Research Officer and Parkinson’s Research Advocate, Chair Patient & Public Inclusion & Engagement WG	Professor Tony Schapira Head of Clinical Neurosciences and Consultant Neurologist, Co-Chair Treatment Selection WG	Professor Oliver Bandmann Professor of Movement Disorders, Co-Chair Treatment Selection WG	Professor Jeremy Chataway Professor of Neurology and Consultant Neurologist, Chief Investigator Octopus trial

Our International Advisory Group

The EJS ACT-PD Initiative also benefits from the input of an International Advisory Group of key senior researchers and international representation who provide feedback and advice to the Steering Group on the delivery and evolution of the trial.

Chair - Dr Jesse Cedarbaum Professor (Adjunct) of Neurology and Psychiatry, Founder and Head, Coeruleus Clinical Sciences LLC	Professor Tony Lang Professor of Neurology, University of Toronto	Dr Adam Boxer Endowed Professor in Memory and Aging, Weill Institute of Neurology, University of California, San Francisco
Dr Richard Wyse Director of Clinical Development, Cure Parkinson’s Trust	Dr Brian Fiske Co-Chief Scientific Officer, The Michael J. Fox Foundation for Parkinson’s Research	Professor Max Parmar Director of MRC CTU and coordinator of the STAMPEDE trial, UCL